Muere Sophia, la niña que inspiró la lucha contra la discriminación de las enfermedades raras

Su caso se convirtió en un símbolo para la lucha contra la discriminación de las personas con enfermedades raras. La noche del jueves, Sophia, de 10 años, falleció después de que su estado de salud empeorara repentinamente. “Nuestra #SweetSophia dejó...
Load more
Read full article on:
Ousted US Attorney Geoffrey Berman to testify before House panel
Geoffrey Berman, the ousted US attorney for the Southern District of New York who was leading probes into President Trump’s allies, is scheduled to appear in a closed-door meeting Thursday before the House Judiciary Committee. Last month, Berman was engaged in an extraordinary standoff with Attorney General William Barr, who sought to have him leave...
6 m
Your guide to the best light ice creams and frozen desserts
Satisfy your sweet tooth with all the flavor and none of the guilt
Redfield clarifies CDC guidelines for school reopenings after coronavirus closings
Centers for Disease Control and Prevention Director Robert Redfield clarified Thursday that the agency would not be revising their guidelines, but instead offering “different reference documents” for local governments and school districts to review as they begin to determine whether they can safely reopen schools this fall.
Naya Rivera missing: Celebrities share prayers as ‘Glee’ star feared dead
Naya Rivera’s “Glee” co-stars and other celebrities are sharing prayers and tributes to the actress — who is presumed dead after vanishing while boating on a California lake. Harry Shum Jr., who played Mike Chang on the hit Fox musical series, tweeted, “Praying.” “Sick to my stomach. Please pray,” wrote Damian McGinty, who played Rory...
Holocaust survivor, Julian Edelman invite DeSean Jackson to learn about anti-Semitism
The Eagles wide receiver has apologized for posting anti-Semitic comments on Instagram.
‘Glee’ star Naya Rivera shared chilling message days before disappearance
"No matter the year, circumstance, or strifes everyday you're alive is a blessing," Rivera wrote.
Best SoCal places to go whale watching right now
You can see blue and humpback whales off the coast in summer. Tours are happening for those who want to go.
David Mitchell's expanding universe swallows up the '60s
In "Utopia Avenue," the giant, brilliant multi-novel Mitchellverse alights in swinging-'60s London with a winking rock homage.
GLAAD Media Awards going virtual with help from Chloe x Halle, Dolly Parton, others
Chloe x Halle, Lil Nas X, Dolly Parton, Dan Levy, the cast of "Pose" and more stars will participate in GLAAD's virtual awards ceremony this month.
COVID-19 and blood type: What's the link?
Scientists are finding evidence that blood type may be a risk factor for COVID-19. In one study, people with Type A blood were more likely to be hospitalized.
Man found fatally shot outside laundromat in Northeast Washington
The victim is the 12th person killed in the District this month, and the 94th this year.
Church volunteers tell black woman she can’t sit on lawn, post ‘no trespassing’ sign
Volunteers at a Los Angeles church put up a “no trespassing” sign — when a black woman sat on its front lawn, video shows. Alex Marshall-Brown, an actress who appeared as a stuntwoman in Quentin Tarantino’s “The Hateful Eight,” posted a 5-minute clip Tuesday of her experience outside St. Paul’s First Lutheran Church in North...
Germany's Angela Merkel: Lies are 'no way to fight the pandemic'
Why fall college sports may be in peril
SportsPulse: As Christine Brennan points out, the Ivy League's decisions have often been a tell tale sign for all college sports and it's time to prepare for a fall without college football.
Tucker Carlson: The left doesn't want Biden to debate Trump
New York Times columnist Tom Friedman is calling for Joe Biden to skip the fall presidential debates.
Texas emergency doctor: State may need stadium-type venue to handle COVID-19 patients
As coronavirus cases and hospitalizations continue to climb, Texas may be forced to open up a stadium to handle the influx of patients, Texas Medical Association President Dr. Diana Fite warned Thursday.
Support your favorite artists with Society6's gorgeous new face masks
Known for selling all types of goods covered in works by independent artists, Society6 has finally launched face masks.
When COVID-19 cut off supplies to a remote Alaska town, a hometown hero stepped up
When a remote Alaska town's ferry shut down due to COVID-19 concerns, Toshua Parker, owner of the town's only grocery store, stepped up to transport supplies. He makes a 14-hour trip weekly. Parker doesn't hike up prices in his store, despite the extra costs to him. Dana Jacobson reports on this story of neighbors looking after neighbors during the pandemic.
Sick Nazi song goes viral on TikTok with more than 6.5 million views
It took three days to yank the appalling anti-Semitic song.
Wisconsin Supreme Court OKs GOP-authored lame-duck laws
The conservative-controlled Wisconsin Supreme Court has upheld Republican-authored lame-duck laws that curtailed the powers of the incoming Democratic attorney general
Is evangelical support for Trump a contradiction?
Fran Flynn (C) prays during the “Evangelicals for Trump” campaign event held at the King Jesus International Ministry as they await the arrival of President Trump on January 3, 2020, in Miami, Florida. The rally was announced after a December editorial published in Christianity Today called for President Trump’s removal from office. | Joe Raedle/Getty Images A religious historian explains why Trump wasn’t a trade-off for American evangelicals. In early June, President Trump had federal officers use tear gas and rubber bullets to disperse a peaceful protest so he could stage a photo op outside St. John’s Church, which sits across from the White House. The image, now infamous, shows Trump awkwardly holding up the Bible as though he’s never held a book in his life. It’s a surreal shot that somehow captures the performative dimension of his entire presidency. But why the Bible? And why go through all that trouble to do the photo op in front of a church? It’s well-known that evangelicals are one of Trump’s most loyal constituencies, but it’s still not clear why. Conventional wisdom says that evangelicals held their noses and voted for Trump purely for pragmatic purposes — the biggest reason being the Supreme Court. They may not like him, the argument goes, but he’s a useful political vehicle. (See, for example, the Court’s decision on Wednesday that allows the Trump administration to expand religious exemptions for employers who object to the Affordable Care Act’s contraceptive mandate.) But what if Trump wasn’t a trade-off for evangelicals? What if an obsession with manhood and toughness made a figure like Trump the natural fulfillment of their political evolution? This is the argument Kristin Kobes Du Mez, a historian at Calvin University, makes in her new book Jesus and John Wayne. According to Du Mez, evangelical leaders have spent decades using the tools of pop culture — films, music, television, and the internet — to grow the movement. The result, she says, is a Christianity that mirrors that culture. Instead of modeling their lives on Christ, evangelicals have made heroes of people like John Wayne and Mel Gibson, people who project a more militant and more nationalist image. In that sense, Trump’s strongman shtick is a near-perfect expression of their values. To be candid, I wasn’t sure what to make of this thesis, but I’m also not an authority on American evangelicalism. So I contacted Du Mez, who teaches at a Christian college and has spent 15 years studying evangelicals, to talk about the direction of the movement and how it led to Trump and what she calls our “fractured political moment.” A lightly edited transcript of our conversation follows. Sean Illing The contrarian argument at the core of your book is that the relationship between Trump and (mostly white) evangelicals is more harmonious than most people suggest. Can you sum up your thesis? Kristin Kobes Du Mez Well, there are all these theories that evangelicals were holding their noses when they voted for Trump, that they were somehow betraying their values. But I’ve studied evangelicals for a long time and I was watching them very closely during the election and in the aftermath, and I just didn’t see any regrets at all. There was no angst or no sense that this was somehow a difficult trade-off. In fact, what I saw was a bunch of enthusiasm. There were some evangelical leaders who were expressing caution about Trump, but most of the rank and file had zero difficulty supporting Trump. Sean Illing And when did that become clear to you? Kristin Kobes Du Mez I’d say right around the time the Access Hollywood tapes were released — that’s when it crystallized for me. So we had these tapes where Trump is talking about sexually assaulting women in such crass terms. And the media really homed in on white evangelicals at that moment, asking if this was a bridge too far. Although there was a little hesitation here and there from evangelicals, about a week later they were all back on board. Sean Illing I know you teach at a Christian university, but did you grow up in the evangelical world? Do you know it from personal experience? Kristin Kobes Du Mez I didn’t identify as an evangelical growing up, but most evangelicals don’t. We tend to identify as Christians. Looking back, though, I would probably define myself as evangelical-adjacent. I grew up in a small town in Iowa, and this was very much a part of my world. As I grew up, I was exposed to this evangelical popular culture through our local bookstore, the only bookstore in town. The shelves were filled with these evangelical books, with Christian contemporary music and Christian movies. I was in a Christian youth group. And so my experience with evangelicalism was through the popular culture. Sean Illing Help me understand why masculinity and nationalism are so foundational to the contemporary evangelical worldview. Kristin Kobes Du Mez What I look to as a historian is this critical period in the post-World War II era when these gender ideals fuse with anti-communist ideology and this overarching desire to defend Christian America. The idea that takes root during this period is that Christian masculinity, Christian men, are the only thing that can protect America from godless communism. At the same time, you have the civil rights movement destabilizing white evangelicalism and conceptions of white masculinity. Then you have feminism destabilizing traditional masculinity. And all of this comes together for evangelicals, who see their place in the culture slipping away, and they see their political power starting to erode because of this cultural displacement. That’s the moment when you see Christian nationalism linking together with a very militant conception of Christian manhood, because it’s up to the Christian man to defend his family against all sorts of domestic dangers in the culture wars, and also to defend Christian America against communists and against military threats. Sean Illing So the idea is that Christian masculinity is the only thing that can preserve traditional American culture and that belief is what precipitates the turn toward a more muscular Christianity? Kristin Kobes Du Mez That’s exactly right. So when you think of evangelicals, a lot of people think of the term “family values.” But I actually went back to the origins of family values evangelicalism and I was really surprised just how much it was placed in the context of foreign policy, how much it was in the service of defending the American nation. If you go back and listen to James Dobson of Focus on the Family and read the books that emerged during this period, this is all very clear. Sean Illing The phrase “family values” is typically hurled at evangelicals in order to call out their hypocrisy, but I think your book makes pretty clear that they’re not hypocrites at all. They only appear hypocritical if you misunderstand what they actually value. Kristin Kobes Du Mez Exactly. If you understand what family values evangelicalism has always entailed — and at the very heart of it is white patriarchy, and often a militant white patriarchy — then suddenly, all sorts of evangelical political positions and cultural positions fall into place. So evangelicals are not acting against their deeply held values when they elect Trump; they’re affirming them. Their actual views on immigration policy, on torture, on gun control, on Black Lives Matter and police brutality — they all line up pretty closely with Trump’s. These are their values, and Trump represents them. Sean Illing I’d like to steelman the evangelical perspective, so can you tell me what cultural forces they’re reacting against? Kristin Kobes Du Mez Well, it changes over time. In the ’40s and ’50s, it’s all about anti-communism. But once the civil rights revolution takes hold, it becomes about defending the stability of the traditional social order against all the cultural revolutions of the ’60s. But the really interesting moment for me is in the early ’90s when the Cold War comes to an end. You would think there would be a kind of resetting after the great enemy had been vanquished, but that’s not what happened. Instead, we get the modern culture wars over sex and gender identity and all the rest. And then 9/11 happens and Islam becomes the new major threat. So it’s always shifting, and at a certain point I started asking the question, particularly post-9/11, what comes first here? Is it the fear of modern change, of whatever’s happening in the moment? Or were evangelical leaders actively seeking out those threats and stoking fear in order to maintain their militancy, to maintain their power? Sean Illing So this drift into a more militant and nationalist Christianity leads to this obsession with toughness and machismo. The way you put it is that evangelicals are looking for “spiritual badasses.” They don’t want gentle Jesus, they want William Wallace or John Wayne. Kristin Kobes Du Mez Yeah, these are their role models. Most white evangelical men that I knew during the height of this movement, which is really the early 2000s, were very militant. They were buying these hypermasculine books and taking part in these men’s reading groups. They weren’t living out this rugged, violent lifestyle, except maybe at weekend retreats where they role-played this stuff. But in real life, they were still walking around in khakis and polo shirts, but these were the values that were really animating their worldview. Sean Illing Wait, are there weekend retreats where evangelical men are role-playing Braveheart? Kristin Kobes Du Mez I don’t know about that in particular, but this is very much a thing. The success of John Eldredge’s book Wild at Heart [a huge bestseller that urged young Christian men to reclaim their masculinity]was a big deal in the evangelical world, and it sold millions of copies just in the US. Every college Christian men’s group was reading this. It was everywhere in the early 2000s. There were lots of conferences celebrating this version of a rugged Christianity. It was big business, and there were lots of weekend retreats where men could go out into the wilderness and practice their masculinity. Local churches invented their own versions of this. One church I know in Washington had their own local Braveheart games that involves wrestling with pigs or something. It was all weird and different, but the point was to prove and express your masculinity. Sean Illing Is this fascination with manhood unique to evangelical culture in particular? Or is this something you find in other Christian subcultures? Kristin Kobes Du Mez The emphasis on strict “gender difference” and perceived need to “define” Christian manhood is far greater in conservative white evangelicalism than in other Christian subcultures. White evangelicals also stand out in terms of their emphasis on militancy and their conceptions of masculinity, and in how that militant masculinity is connected to Christian nationalism. In Black Protestantism, for example, you may find an emphasis on Christian manhood, but you’re much more likely to encounter discussions of fatherhood rather than a militant warrior masculinity. In mainline Protestantism you’ll be more likely to encounter a kinder, gentler masculinity — more of the Mr. Rogers sort. (Militant white evangelical masculinity explicitly denounces Mr. Rogers’s model of manhood.) That said, evangelical constructions of masculinity have made inroads into mainline circles largely via popular culture (many mainline churches use evangelical literature in their small-group Bible studies, for example), so the lines between white evangelical and mainline Christianity are not always all that clearly drawn. Sean Illing There’s a lot going on there, but I’ll bring this back to Trump. Do most evangelicals consider him a spiritual badass? Kristin Kobes Du Mez For many he’s not, but he is their great protector. He’s their strongman that God has given them to protect them. So, again, the ends justify the means here. But I think it’s important to understand that the appeal of Trump to evangelicals isn’t surprising at all, because their own faith tradition has long embraced this idea of a ruthless masculine protector. This is just the way that God works and the way that God has designed men. He filled them with testosterone so that they can fight. So there’s just much less of a conflict there. The most common thing that I hear from white evangelicals defending Trump is that they just wish he would tweet less. I don’t find a lot of concern about his actual policies or what’s in his heart. Sean Illing I don’t understand how a draft-dodging, spray-tanned hypochondriac has become a hypermasculine protector for militant evangelicals — Kristin Kobes Du Mez I mean, that’s fair, but you have to remember that their whole idea of militant masculinity was formed in reaction against feminism and more recently against so-called political correctness. That has been just such a powerful enemy for white evangelicals who feel oppressed by these new standards of behavior. And I think Trump really succeeds by not following any of those rules of civil discourse. Sean Illing If most evangelicals are taking their moral and political cues from Trump or the Duck Dynasty clan or from Christian radio and television, haven’t we crossed over into something post-religious, something closer to a lifestyle or a cultural pose? Kristin Kobes Du Mez I think we have. But I will say there is still diversity within evangelical churches, communities, and families. There are so many evangelicals who read their Bible every morning, who hold to scriptural teachings as they understand them. But for many of them, the Bible is a complicated book. Which verses do you hold on to as formative for your life, and which do you dismiss? Many are reading through the filter of this ideology now. But I’ve encountered lots of evangelicals who don’t want to speak out, who feel a lot of pressure within their own communities. This is not what their faith means to them, this is not what Christianity is to them. So when we talk about white evangelicals, we should acknowledge that there is disagreement within churches and communities and families, but it’s true that a solid majority of white evangelicals have bought into this ideology. Sean Illing One of the most interesting threads in your book is this story about how evangelical leaders have tried to modernize the church by using pop culture to lure people in, but over time the pop culture has completely supplanted the theology and all that’s left is the vacuous political brand. Kristin Kobes Du Mez I teach at a Christian university, so the majority of my students would fit into this category of white evangelicals. And just this past year, I was teaching a course where it involved reading the first three chapters of Genesis. It was about biblical gender roles and taking a critical look. And at one point during our discussion, one woman raised her hand and said, “I have a confession to make. I think this is the first time I’ve actually read the first three chapters of Genesis ... I’ve been working with the VeggieTales stories and I assumed I knew this, so I didn’t bother with the Bible.” [VeggieTales is a Christian animated series for kids that uses pop culture to retell biblical stories.] She was so embarrassed to confess that, but then several other students confessed to the same thing. So this is the evangelical culture these kids have been raised in. They listen to pop Christian music on the radio. They read the pop Christian books. They watch Focus on the Family children’s programming. They watch VeggieTales cartoons. And Christian parents are told to keep their kids away from the broader secular culture, so it’s also very insular. They stick to the Christian version of it. That’s the only theology they know. Sean Illing This is really a story about a religious movement getting entangled with politics and consumerism and being bastardized as a result of the collision. Kristin Kobes Du Mez I think that’s right, and there’s a lot of money to be made through the book sales, the advertising, and the connections between the political strategists and some of the folks behind this consumer market. What I really tried to do here is just understand the networks behind American evangelicalism. Who is publishing what? What are the distribution networks? It’s critical to understand evangelicalism through this lens. Even when someone walks into a Christian book store or goes online and orders a Christian product, that feels like an authentic expression of their faith to them. Sean Illing I hear people say all the time that Trump’s election was a tragedy for evangelicals, but after reading your book, I wonder if it isn’t their greatest victory. Kristin Kobes Du Mez It depends on your vantage point, right? I’ve been studying evangelical masculinity for almost 15 years and seeing the veil ripped off in this way was almost cathartic for me. I was able to see the nature of the movement with even more clarity. This is what “family values” evangelicalism looks like and now it’s apparent to everyone. But for evangelical dissenters, this is indeed a tragedy. And yet I think even those who are resisting, or who are calling this out and who are struggling with the direction that evangelicalism has taken, still need to reckon with the ways in which they, too, as part of this tradition, have been complicit in this ideology. The Trump era didn’t just happen. We’ve been moving in this direction for a long time. Support Vox’s explanatory journalism Every day at Vox, we aim to answer your most important questions and provide you, and our audience around the world, with information that has the power to save lives. Our mission has never been more vital than it is in this moment: to empower you through understanding. Vox’s work is reaching more people than ever, but our distinctive brand of explanatory journalism takes resources — particularly during a pandemic and an economic downturn. Your financial contribution will not constitute a donation, but it will enable our staff to continue to offer free articles, videos, and podcasts at the quality and volume that this moment requires. Please consider making a contribution to Vox today.
Johnny Depp wrote ‘I love you’ with bloody finger during three-day attack, Amber Heard says
Johnny Depp scrawled “I love you” on a mirror with blood from a finger he severed during a “three-day ordeal of assaults” on new wife Amber Heard, his libel trial was told Thursday. Heard was left “scared for her life” and barricading herself in a room after Depp tore off her nightgown, shoved her onto...
Ohio state lawmaker calls for people to stop getting tested
An Ohio state lawmaker called for people to stop getting tested for coronavirus as he railed against a state health order requiring people in seven Ohio counties to wear masks in public spaces starting this week.
‘Glee’ star Naya Rivera’s fans lash out at authorities for suspending overnight search
Fans claimed it would've continued had Rivera not been a woman of color -- drawing comparisons to her white "Glee" co-star Lea Michele.
Jenna Dewan posts revealing swimsuit pic 4 months after giving birth
Jenna Dewan has an amazing post-baby body.
Top athletes maintain fitness and focus during pandemic
As many professional athletes work toward the resumption of their respective seasons, how have they been keeping sharp during lockdown? CBS News special correspondent Alex Wagner speaks with two of the country's top athletes to see how they're staying ready both mentally and physically.
Black Americans have to wait longer to vote. Here’s how to fix it.
A remedy for the time tax.
Ex-NBA star Stephen Jackson says remarks about DeSean Jackson were twisted, but apologizes
Former NBA star Stephen Jackson issued a muddled apology for defending NFL wide receiver DeSean Jackson's anti-Semitic posts, saying he's sorry for using "the wrong words," but that his comments were being twisted.
Relentless heat wave to bake the U.S. for "multiple weeks"
More than 80% of the nation — 265 million people — will sweat through highs above 90, and another 45 million will swelter in triple-digit temperatures.
Stocks rise as investors bet on a recovery
Stocks ticked higher Thursday as investors brushed off concerns over a surge in coronavirus outbreaks after a closely watched gauge of layoffs edged lower last week.
Walmart is about to give Amazon Prime a serious run for its money
Walmart is reportedly close to launching its own membership program that closely resembles Amazon Prime.
TSA adds security measures following meeting with whistleblower who accused agency of not doing enough
The TSA’s director in Kansas filed a whistleblower complaint against the agency last month
Russian resolution to cut US-backed Syrian cross-border aid program fails at UN Security Council
A Russian effort to slash a cross-border aid program to Syria’s northwest failed on Wednesday, a day after both Russia and China killed off a U.S-backed effort to expand the crossing points to the northeast -- as experts warned of a brewing humanitarian crisis.
Tropical system trying to form off East Coast
If it becomes a named storm, it will be called Fay.
Amy Schumer wanted 'Expecting Amy' to be 'real as hell,' recalls 'parenting fail' of son's name
"All my friends have babies, but I hadn't been exposed to how hard pregnancy is," Amy Schumer says in an interview about her new documentary, "Expecting Amy."
Dentist's clever hack for making face masks fit better goes viral on TikTok
Olivia Cui demonstrates how to make a loose-fitting surgical mask tighter and more snug in a now-viral TikTok.
Ty Herndon reveals his stolen truck was recovered with 5 bullet holes in it: 'Do better'
Country singer Ty Herndon’s stolen truck was found by police with five bullet holes in it after a three-week search.
Joy Reid named evening weekday evening host at MSNBC
Reid will take over the hour long held by Chris Matthews' program "Hardball."
President Trump threatens school funding, demands new CDC guidelines amid reopening battle
The CDC will release new guidelines next week on safely reopening schools, after President Trump slammed the current guidelines as being "very tough and expensive." The president also threatened to pull federal funding for schools that don't open in the fall. Paula Reid reports.
Joe Biden Vows to Reverse Supreme Court on Religious Exemptions in Obamacare
Former Vice President Joe Biden promised Wednesday to reverse the religious protections guaranteed by the U.S. Supreme Court in recent decisions allowing private companies and religious groups exemption from Obamacare's contraceptive mandate.
‘The Guest’ is a Horror Masterpiece About the Toll of America’s “Forever War”
The Guest is about the horrors of what soldiers bring home from war.
Kick out the Trump enablers, too
Maybe it will change their behavior.
Supreme Court to rule on Trump's financial records
SCOTUS is expected to rule on two momentous cases that will determine whether the House and a New York prosecutor can successfully subpoena Trump's accounting firm and banks for his taxes and financial documents. Follow here for the latest.
The health effects of Covid-19 go far beyond the virus, WHO says
Vandals cut down 9/11 Memorial flagpole in New York village
Police in New York have launched an investigation after a flagpole at a memorial honoring five firefighters who died in the September 11 terrorist attacks was cut down by vandals.
Joe Biden Repeatedly Lifts from Bernie Sanders' Platform to Be 'Most Progressive Since FDR'
Joe Biden released the Biden-Sanders Unity Task Force Recommendations on "Combating the Climate Crisis and Pursuing Environmental Justice," but the end product reads more like Sanders than Biden.
Pompeo says US will fulfill financial pledges to WHO before withdrawal
Secretary of State Mike Pompeo acknowledged that the US will fulfill its financial obligation to the World Health Organization before it formally exits the United Nations agency next year, according to a report. “We will work with Congress with respect to the appropriated funds,” Pompeo said Wednesday, according to Fox News. “We’ll get it right.”...
Navy updates coronavirus policy to allow church attendance, 'major victory' for religious liberty advocates
The Navy updated its coronavirus restrictions policy to allow service members to attend houses of worship after chaplains and a religious liberty law firm complained last week alleging the temporary orders were being unlawfully applied.